Smail BELDJELALIA (DHEC 2017) is directing the documentary Vivre (presque) comme les autres, the first screening of which will take place on Saturday July 6 from 10am to 12pm at the 16th IRTA World Congress.
Vivre (preque) comme les autres highlights the lives of children and adults suffering from intestinal failure, and treated by parenteral nutrition or transplantation. The director aims to raise public awareness of this little-known condition by immersing viewers in the lives of 8 families affected by this disease.
Previously, Smail BELDJELALIA collaborated with author Valérie SEGUIN on a documentary inspired by her book " Les trois jours et demi après la mort de mon père "(Edition les Arènes).
The presentation and screening of Vivre (presque) comme les autres will take place at the Institut des Cordeliers, 21 rue de l'Ecole de médecine, 75006 Paris.
Free admission upon reservation by e-mail to [email protected]
Synopsis
Intestinal insufficiency is a little-known condition characterized by the inability of the intestine to perform its nutrient assimilation functions. The main causes are short bowel (after resection of the small intestine for various reasons), intestinal motor diseases (diseases affecting the nerves or muscles of the digestive wall, such as extensive Hirschsprung's disease, or chronic intestinal pseudo-obstruction), and diseases of the intestinal mucosa (diseases affecting the enterocytes, the cells lining the mucosa). Chronic intestinal failure is a rare disease, affecting between 370 and 530 adult patients in France. In children, new cases of shortened small intestine (the main cause of chronic intestinal failure in children) are difficult to quantify, and are thought to number between 150 and 9000/year. The consequences are delayed development and growth, and malnutrition that can lead to death. The first-line treatment for chronic intestinal failure is parenteral nutrition, which involves supplying nutrients by vein, via a central catheter, an implantable chamber or an arteriovenous fistula. The infusion is connected every evening and disconnected in the morning. This treatment, which requires complex, meticulous care (not least because of the risk of infection), is initiated in hospital, where it is taught to the patient or his or her family, and then carried out at home, sometimes for very long periods in cases of irreversible intestinal failure. In the event of serious, life-threatening complications of parenteral nutrition, intestinal transplantation (often combined with liver transplantation or multivisceral block transplantation) offers these patients a second chance at life. Over the last 30 years, significant progress has been made in the management of patients with chronic intestinal failure, enabling most of them to live an almost normal life.
